Currently avoiding:
Foods - eggs, milk, mustard, peanuts, tree nuts, and wheat.
Additives - artificial colors, aspartame and sucralose.
Animals - allergic to cats and dogs.
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Currently avoiding:
Foods - eggs, milk, mustard, peanuts, tree nuts, and wheat.
Additives - artificial colors, aspartame and sucralose.
Animals - allergic to cats and dogs.
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Great information. Will be sure to share with my clients. Let me know if I can be of service (I am a therapist/coach specializing in working with families with food allergies). A restricted diet can be stressful but it doesn't have to hinder your fun! Elika Kormeili, Founder of Center for Healthy and Happy Living www.centerforhealthyandhappyliving.com
ReplyDeleteHi, have you ever read the GAPs diet book or Practical Paleo (particularly the Autoimmune Protocol and FODMAP/SIBO sections). I think they are well worth a read and have been very important for our children's eczema and allergies. Cutting down on all sugar (including fruit) and difficult to digest starches have made a huge impact for us.
ReplyDeleteI have looked into the GAPS diet, but there are so many foods involved that my daughter cannot eat, so we never tried it. I've read a thorough a chronicle of a friend's family that tried it out and it appeared to be beneficial, but as with all plans, it won't mesh with everyone's particular restrictions. From reading the Autoimmune Protocol, it looks like we're already following most of it, without knowing it, aside from the things we simply can't do. We cannot avoid potatoes, as it's one of her few safe vegetables, for example, and her safe milk is hemp milk (seed)...
DeleteThanks for the suggestion, though, options are always good!
Have you also looked into salicylates, especially for asthma and eczema.
ReplyDeleteYes, I have, but again, restrictions get in the way. Applesauce is pretty much her only cleared "fruit" option.
DeleteHi,
ReplyDeleteMy 2.5 year old son is allergic to dairy. I was shocked to learn that the Affordable Care Act does not cover epinephrine injectors, life-saving medication for people with food allergies. I wrote a petition on change.org asking the US Government to mandate that all insurance plans cover epinephrine injectors. Please take a look and consider signing and sharing this petition on your blog with your followers.
Thanks!
Lisa Kane
Here's the link:
http://www.change.org/petitions/president-of-the-united-states-include-epinephrine-injectors-as-covered-medication-in-the-affordable-care-act?share_id=KtaGaXRmzV&utm_campaign=share_button_action_box&utm_medium=facebook&utm_source=share_petition
Hello! I just saw your petition. A friend shared it and I recognized the photo from my Adrenaclick Re-Launch post. I agree that cost should not be a prohibitive barrier for those dealing with anaphylaxis. I will share your petition!
DeleteThank you so much for your blog. You are so correct when you say that when doctors give a diagnosis, they should give a parent blog of someone with similar diagnosis! I will link your page to my Eczema Relief Foundation page because you are a wealth of knowledge.
ReplyDeleteThank you very much! That means a lot to me! :)
DeleteMy baby has been suffering from eczema since 2 months old. She's 9 months old & I took her to an allergist (on my own). She is allergic to wheat, soy, milk, almonds, tree nuts, egg yolk...I don't know what else. She has been on nutramigen, which has milk & soy in it. I feel horrible because I didn't know:( I tried flax milk last night...her cheeks & neck turned red. I am going to try hemp next..hopefully I can make my own, if she does well with it. Have you ever made your own?
ReplyDelete(((HUGS))) for you and your little one. Please don't feel too bad, because there's no way you could have known. I would like to note that I would go with saying "egg" rather than "egg yolk" since it's pretty hard to truly separate the two. I tried to make my own hemp milk, once, but I couldn't get the vanilla flavor quite right. She is 3 months away from being off formula, so perhaps consider something elemental in the interim, as non-dairy milks are not substitutes for infant formula, unfortunately. We started on hemp milk at 19 months, because that's when we found out about it. I have always used Living Harvest Tempt, but I am not 100% thrilled that it has carrageenan in it, which can be inflammatory. I used to think the concern was cancer, which was refuted, but it turns out that it's more of an immediate concern. However, it might be rather low on the scale of things to worry about, when you are trying to reach a stable base.
DeleteBe careful to read eczema lotion/treatment labels for food ingredients, as this can sometimes be a problem. I've found that Aquaphor Ointment can be helpful.
Also, please be judicious in your use of any steroid creams or hydrocortisone ointments. Sorry, I am just thinking of things I wish I had been told back in the beginning.
I wish you luck in soothing your baby girl's skin and getting to your new "normal". (((more hugs)))
Here's a link to a hemp milk recipe from Manitoba Harvest: http://manitobaharvest.com/recipes/3994/Raw-Hemp-Milk.html
I'm so happy to have found this website! I've had a hard time finding anyone writing about their child with multiple food allergies. I also don't usually post anything, but I'm just so happy to have found what seems to be a life line for me. My daughter is 10 months old and so far is allergic to milk, soy, wheat, eggs, nuts, and tree nuts. She has had horrible eczema (atopic) since she was two and a half months old and also has asthma. We found out about her food allergies when she was about six months old after she had an almost anaphylaxic reaction to milk formula for the first time. It was absolutely terrifying! I feel we are slowly getting a handle on things now and settling into our, like you said, new "normal." Thank you for creating this blog. It is very comforting for me.
ReplyDeleteI am so glad to be of some help! I know how overwhelming it can seem when so many common foods are removed as possibilities. I also know, though, that there are still plenty of things left to eat, surprisingly enough! I recommend the allergy-friendly cookbooks from Colette Martin and Cybele Pascal, which also help stock your pantry. (((HUGS)))
DeleteI want to tell you how happy I am that you have this blog and are helping people, whether it be coping with their allergies, their new life, or anything else. My daughter completed oral-immunotheraoy (OIT) treatment with my doctor in private practice and it has changed our lives. Sending the message that advancements are on the way, whether it be by Aimmune, Peanut Patch, the peanut pill, or OIT with no medicine like my daughter's treatment, is important, as it gives hope for the future for everyone. No solution is for everyone in the world, but I am confident that most of our issues will be addressed by these options.
ReplyDeleteI don't throw the word cure around, but I do like the peace of mind and visual evidence of tolerance everyday when my daughter eats her peanuts. I do like that research has shown that those who complete OIT and maintain for two years have been able to tolerate 10-12 peanuts without reaction after a month of avoidance. Half were able to eat 24+. Of those who couldn't eat more than 12, their reactions were less severe than pre-OIT. I don't plan on avoiding peanuts for a month or longer, so I feel confident in our approach. I know that we could skip if sick or something and still be fine.
Having said all of the above, I don't blame anyone for waiting or judge anyone's choices on which route to go. Safety and improvements for the future are all of our goals.